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Passion in Motion: Supporting Rare Disease Day in Romania

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In an effort to bring light and hope into the lives of those affected by rare diseases, an innovative project has taken root in the heart of the Brazilian Jiu-Jitsu (BJJ) community in Romania. Under the motto “Rolling for Rare,” this project was initiated by the Children’s Joy Association for Dystonia  together with the Iguana Fight Team Association of contact Sports, aiming to unite forces to support the cause of rare diseases through art and sport.

Sporting and awareness activities were made possible at a camp organised at Cheile Grădiștei, an important tourist destination in Romania. Here, passionate Brazilian Jiu-Jitsu athletes not only from Romania but also from other corners of the world, such as England (London) and Germany (Berlin), gathered to improve their skills in the art of Brazilian Jiu-Jitsu, supporting the Children’s Joy Association’s initiative for Rare Disease Day. In this energetic and determined atmosphere, messages of solidarity and awareness were passionately conveyed. Through videos and photos distributed on social media, members of the Brazilian Jiu-Jitsu community shed light on this important day.

Their messages travelled from Cheile Grădiștei to people’s homes around the world, contributing to the popularisation and awareness of rare diseases. Brazilian Jiu-Jitsu is not just a sport but also a strong community dedicated to health, respect and personal improvement. Within this community, BJJ enthusiasts use their skills and passion to support causes that truly matter. Through the “Rolling for Rare” project, they aim to combine their love for BJJ with efforts to raise awareness and support for rare diseases.

During Brazilian Jiu-Jitsu fights, qualities such as physical and mental resilience, adaptability, determination, and community support are developed. The analogy between improving these qualities in sports and fighting against rare diseases shows us that the efforts and qualities needed to overcome obstacles are universal, whether physical or emotional.

A second extraordinary initiative took place at the MC Gym Motion sports hall, a concept that combines sports activities with recovery. Here, an art and sports exhibition dedicated to Rare Disease Day brought together a selection of paintings created by local artists and children, each expressing a unique story about the life and experience of those affected by rare diseases.

Catalina and Marius Crainic

 

The post Passion in Motion: Supporting Rare Disease Day in Romania appeared first on Dystonia Europe.


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